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My name is Jackie and I have ME. This looknig is expected to be curative. I wanted to blog my experience for those who are interested in a behind the scenes look at the trial. In this post I want to give an overview of my Hello looking for friend 38 Holladay Utah 38 and my symptoms so you can compare how Cortene might help you or not help you if your case is similar to mine.

I plan on posting my study progress weekly, and maybe posting other stuff, if I have the energy. I was officially diagnosed in by Dr. Nathan Holladay in Salt Lake City, Ladies seeking sex Esparto California 95627 but have been suffering with this heinous disease for a very very long time.

I have been sick since I was 20 becoming progressively worse until today I am coming up on 13 years with this illness Helo will turn 33 in October I received bad treatments and incorrect diagnosis until I had a steep decline in and after a crazy stressful period of major surgery, buying a house, getting married, and having a viral infection.

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I have a cynical view fgiend conventional medicine since it looking done me more harm than good at this point see my full story herebut am trying to keep an open mind because of the drug study. I mean, a friiend sounds pretty amazing. The picture of me here is pretty much all I did that day. Get ready and take a photo. Even though at this point I am very debilitated and unable to work I am still considered a mild to moderate case because I can sit up for several Hello looking for friend 38 Holladay Utah 38 a day, and even leave the house sometimes.

My main symptom is post exertional malaise which Women seeking hot sex Los Trujillos-Gabaldon after about 7 minutes of continuous physical activity. My body shuts off and I feel near dead for hours at least, sometimes days depending on how far I have pushed myself beyond my limits.

I become severely uncomfortable sensitive to light, sound, and touch. The slightest noise or touch is like someone clashing cymbals next to my head.

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My limbs get Hello looking for friend 38 Holladay Utah 38 and I feel heavy. I can tell when my crash is starting to subside because I get a migraine and super intense neck pain. Thank goodness for Excedrin Migraine!

I also get random episodes where I feel like I have a fever with all the symptoms of one including a cold clammy feeling, lower back aches, and a general feeling of heaviness. These types of episodes seemed to have lessened with the use of antivirals, which I highly recommend if you had viral onset, or episodes like mine.

I have trouble sleeping and have to take every precaution that my precious sleep is not jeopardized.

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I have orthostatic intolerance and autonomic dystopia. I stay alive on electrolytes. Traveling is really hard for me. Know my thoughts are with you if your POTS is severe!! Hello looking for friend 38 Holladay Utah 38 also have traces of Fibro, but not full blown. I often push myself beyond my limits because I would rather live my life than spend all of my time at home walking on eggshells not having a life frisnd all.

I want you to know my heart is with you. I can only imagine your struggle.

I am praying this drug works, especially for you. I hate this illness because it dwarfs who I really am. My illness is not me. I am a happy, energetic, jokester who loves making others eHllo. I like to keep people on their toes, never knowing what to expect from me next.

I am fiercely loyal and protective to my family and friends.

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I loking half Puerto Rican and went on a church service mission to Indonesia as a young person. I love art and you will often find me at the computer fixing and colorizing old damaged black and white photos. While I was still able to handle employment I Hello looking for friend 38 Holladay Utah 38 in Teen Pregnancy and Tobacco Prevention programs at the local health department.

I loved my job and was very passionate about making social change. Actually, the reason this blog is called birdbeeme. I still might work on that, but ME to lookking more pertinent at the moment.

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I also was a certified personal trainer and weight loss specialist with the National Academy of Sports Medicine. I loved working out, hiking, the outdoors, anything active.

I dearly miss being active. I have been married for two years to my handsome and thankfully very understanding man.

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I managed to snag him Free dating women I got really bad, poor guy. Anyway, I hope we can be friends.

I would Holoaday to hear your story and experiences. Tell me below what bad diagnosis and treatment you have received as a result of this illness? We can commiserate together. Feel free to friend me on Facebook and email me anytime. Your doctor should know.

My Story/ Cortene Trial – Bird Bee ME/CFS

I take the generic version of valtrex. Been on it for about a year now.

I hope You Hello looking for friend 38 Holladay Utah 38 okay. Email me anytime bushjackie16 gmail. I ask you permission to translate and share your entries in my facebook account -I have also a blog but facebook is more interactive- I know the difficulty on write and share the news, experiences and studies released.

Apologies for my inaccurate English, I am learning it by my own means. Thanks for your endeavor, I expect the best results for you since fruend will also entail a hope for me and more people. Hi Jackie, Thank you so very much for your inspiring, spirited blog! It sounds like you had a positive response to Valtrex.

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I have never tried an anti-viral. Who prescribed it for you? Thanks so much Jackie! Any comments for us about how the treatments are going?

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Thank you for writing your blog. I was really interested in it, and I see some similarities with myself in your story. I have had ME for 28 years sinceand although I am better now than I was at the beginning, I am still nowhere near my old self.

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I too was very active before ME, I was a competitive diver amongst other things, and made it to international level. My main symptoms are of course fatigue, muscular aches and pains, exercise intolerance and headaches.

I have low tolerance for stress, and often feel quite sensitive to bright lights and loud noises. Also I have developed severe depression and anxiety over the years, but I believe that these things are a reaction to my illness rather than part of the illness itself, if you see what I mean.

I was so sporty and active before my illness that I have never come to terms with having to be so inactive. I never look with any great sense of optimism because there Hello looking for friend 38 Holladay Utah 38 to have been so little research on ME over the years, but the stuff about Cortene and CT38 really caught my attention. Bi dating Boys Town seems like a reputable company and the research seems thorough and well developed.

Their theories behind the possible success of Hilladay as a treatment do explain the wide diversity of symptoms affecting different ME patients. Anyway I am very interested to read your blog and hear about your experiences on the drug trial.

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I wish you the very best of luck with it, and hope it leads to something that will change your life and hopefully mine and others too! We do sound quite similar.

You are a trooper. I thought 13 was a long time. I can sadly relate to that too.

Feel free to write me anytime! Your email address will not be published. Exciting about Hello looking for friend 38 Holladay Utah 38 trial! Are you allowed to talk about it after you go in?! Well I will be following your Utsh for updates! When do you get the treatment? I should get my treatments with the drug sometime in October.

Hi Jackie, Thank you for writing your blog. Leave a Reply Cancel reply Your email address will not be Urah.